Community Resources

There have been several books about lipedema published in the last few years.

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Books

The Book of Lymph


By Lisa Levitt Gainsley

In this first-of-its-kind guide, veteran lymphatic drainage practitioner, educator, and advocate Lisa Levitt Gainsley explains how to maintain lymphatic health, sharing the five-minute self-massage techniques she originally developed for her high-powered Los Angeles clientele. These simple sequences are tailored to address a number of specific and common issues: bloating, headaches, digestive problems, immune health, anxiety, weight loss, acne, inflammation, and more.

Thanks to the astonishing results, it provides—glowing skin, a flatter stomach, enhanced immunity, and full-body detox—the practice of manually stimulating the lymphatic system has become one of the most popular wellness practices today. Lymphatic drainage works because the lymphatic system—a complex geography of rivers that snake throughout the body just beneath the surface of the skin—connects every other bodily system. When lymph flows, everything else flows, too. Available at Amazon, Barnes and Noble, Books A Million, Harper Collins, and Target.

Jeans on a Beach Day


By Susan O’Hara

A book for women who are lipedema patients, or who have symptoms of lipedema, including unusually large legs, hips, or arms, nodules, and fat deposits that may not make sense, and are exploring the possibility that they may have the painful fat disease. The book provides numerous resources, personal patient stories, and quotes that will help the reader understand that she is not alone, and is part of a community of 11% of women in the world with lipedema. Includes QR codes for easy linking to important resource sites and information for medical professionals who may not have been exposed to lipedema during their medical training, but wish to gain information to help their patients with lipedema symptoms. Available at Amazon.

Lymphedema and Lipedema
Nutrition Guide


By Chuck Ehrlich MS MBA, Emily Iker MD, Karen Herbst PhD MD, Linda Kahn CMT CLT, Dorothy Sears PhD, Mandy Kenyon MS RD CSSD, and Elizabeth McMahon PhD

Eat to starve lymphedema and lipedema by having foods that fight these conditions (and cancer) and avoiding foods that contribute to symptoms or related conditions. Learn how food choices affect both conditions and how better nutrition can improve symptoms (including pain) and delay changes associated with progression to more advanced stages. Intended for anyone with, or at risk for, lymphedema or lipedema, caregivers, lymphedema therapists, and other health care providers. Available at Amazon, Barnes and Noble, and Target.

The Ketogenic Solution
for Lymphatic Disorders


By Leslyn Keith OTD OTR/L CLT

The idea of using diet for lymphedema therapy is rapidly gaining ground, and the Ketogenic Solution for Lymphatic Disorders e-book was written to help those with lymphatic disorders implement a ketogenic diet as an effective treatment. Dr. Keith has extensive experience in helping her patients lose weight and dramatically reduce lymphatic swelling by showing them how to switch their standard diet to a low-carb, high-fat way of eating. Her methods and the results of a 2017 study she published in which she and her colleagues showed the positive effect the diet had on treatment outcomes are included in the e-book.

Lipedema Treatment Guide


By Kathleen Lisson CMT CLT

Are you newly diagnosed with lipedema? Maybe you have had the condition for years and are looking for ideas for self-care from a holistic perspective. In this book, you will learn: Treatment goals for lipedema/lipoedema, tips for reducing pain and inflammation, and how to boost your lymphatic system. Available at Amazon and Barnes and Noble.

The Lymphatic Code


By Leslyn Keith OTD OTR/L CLT

The Lymphatic Code also concisely covers chronic lymphatic diseases such as lymphedema and lipedema and how best to treat them. The ketogenic diet advocated by Dr. Keith will give sufferers the best chance to minimize the pain and inconvenience of their disorders, and her clear explanation will help readers implement the diet with ease. The e-book can be ordered here.

The Lymphatic-Friendly Diet


By Kristin Osborn

Kristin Osborn spent years as a sickly child before becoming an overweight adult beset by health problems. Now a certified lymphoedema therapist, she overcame many of her problems by discovering the foods that work best with the lymphatic system, easing digestion, increasing waste removal, and building immunity. In this self-help book for others battling a lymphatic condition many who don’t even know it she shares the recipes that have helped her become healthier and happier. Available at Amazon, Dymocks, Angus and Robertson, Booktopia, Fishpond and Alibris. Read more about this book here.

Lymphatic Yoga


By Edely Wallace

Edely Wallace, yoga master and lymphatic therapist, has been researching the lymphatic system for over 25 years. She is now releasing her findings of many years of intensive study to help people to restore and maintain health. To keep the lymphatic system flowing properly, Edely combines her vast knowledge of yoga with the most recent scientific discoveries about the lymphatic system, creating a new approach for anybody to reach health in a natural effective method – Lymphatic Yoga®. Available at Amazon and Alibris.

Massage Therapist’s Guide to Lipedema


By Kathleen Lisson CMT CLT
Free Download

Self-Love Journal


By April Sluder MSW LSW

Self-love is a state of knowing our own unique worth and value in this world. As women, we have a lot of demands and expectations placed upon us, both by society and by ourselves. Many of us lose ourselves in those expectations and judge ourselves accordingly. As a result, we forget how amazing we actually are.

This 90-day journal provides you with the opportunity to work on building self-acceptance and self-love through a very specific process that includes a daily affirmation and journaling what you are loving about yourself. If you can consistently follow this process, you will find that there is so much about you to love. Available at Amazon.

Swans in Disguise


By Anna-Theresa Bauer MD

When Anna-Theresa Bauer MD was only fifteen years old, pads of fat appeared for no reason in her thighs and hips. And this wasn’t just weight gain from puberty. No matter what she ate, how little she ate, or how much she exercised, the fat just kept on growing. As an adult, Dr. Bauer set herself the task of finally figuring out why she couldn’t stop the fat. What she discovered would set her free—and now she wants to share that freedom with you. It was never her fault. She had a disease called lipedema, and like millions of other women worldwide, she had no idea such a condition even existed. If you’re a woman who just can’t stop gaining weight in your lower body, no matter what you do, you may in fact have lipedema. And with Dr. Bauer’s help, you can overcome the disease you never knew you had. Available at Amazon and Alibris.

Swollen, Bloated and Puffy


By Kathleen Lisson CMT CLT

Recommended Books

Ahead of the Curve


By Jenny Rushmore

Ahead of the Curve is the first sewing book to empower curvy and plus size sewists to feel body confident by sewing a wardrobe that fits. Don’t change your body to fit your clothes—change your clothes to fit your body!

Ahead of the Curve includes 5 basic garments patterns, which includes a pair of trousers, a t-shirt, a sleeveless top and two dress designs. Jenny takes you through a series of “Fit Clinics”—tutorials and case studies demystifying the fitting process—showing you how to adjust these patterns to master the perfect fit for your body shape. Once you have got to grips with this, you can go on to customize your closet and create an unlimited array of fantastic clothes that celebrate your body. If you’re curvy or plus size, trying to find clothes that fit and reflect your personal style can be incredibly difficult and frustrating. Plus size people so often feel excluded and like they can’t express their personality through clothes. This book finally changes that. Available at Amazon, Cashmerette, , , , , and .

BioDiet


By David Harper PhD

For the past 40 years, we have been slowly eating ourselves to death―and doing so based on government guidelines about what constitutes a healthy diet. This grand low-fat, high-carbohydrate dietary experiment has led to epidemic increases in obesity and other chronic conditions, including diabetes, cardiovascular disease, cancer, and Alzheimer’s.

It’s time to hit the reset button. In BioDiet, health educator and researcher Dr. David G. Harper offers a new, scientifically validated approach: a low-carbohydrate, high-fat, ketogenic plan that works with the body’s natural processes to improve health and reverse decades of damage caused by our collective carbohydrate addiction. BioDiet isn’t a “diet” in the usual sense: it’s not a quick fix designed to help shed ten pounds before beach season. Drawing on his professional experience and the latest research in nutritional science, BioDiet is a lifestyle that will leave you healthier and happier. No hype or gimmicks: it’s what the science says. Available at Amazon, Barnes and Noble, Indigo, Rakuten Kobo, and Audiobooks.

The Personalized Diet


By Eran Segal PhD and Eran Elinav MD PhD

There are certain things we take as universal truths when it comes to dieting and health: kale is good; ice cream is bad. Until now. When Drs. Segal and Elinav published their groundbreaking research on personalized nutrition, it created a media frenzy. They had proved that individuals react differently to the same foods-a food that might be healthy for one person is unhealthy for another. In one stroke, they made all universal diet programs obsolete. The Personalized Diet helps readers understand the fascinating science behind their work, gives them the tools to create an individualized diet and lifestyle plan (based on their reactions to favorite foods) and puts them on the path to losing weight, feeling good, and preventing disease by eating in the way that’s right for them. Available at Amazon.

What Doesn’t Kill You


By Tessa Miller

Tessa Miller was an ambitious twentysomething writer in New York City when, on a random fall day, her stomach began to seize up. At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a yearslong nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better.

Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn’s, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications.

Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all. Available at Amazon, Barnes & Noble, and IndieBound.

What to Say When You Talk to Your Self


By Shad Helmstetter PhD

We talk to ourselves all of the time, usually without realizing it. And most of what we tell ourselves is negative, counterproductive, and damaging, preventing us from enjoying a fulfilled and successful life. But with Shad Helmsetter’s Five Levels of Self-Talk (Negative Acceptance, Recognition and Need to Change, Decision to Change, The Better You, and Universal Affirmation), you can take back control of your life via this accessible yet profound technique.

Now filled with new and updated information perfect for the twenty-first century psyche, you can learn how to talk to your self in new ways, and jump-start a dramatic improvement in all areas of your life. So stop telling your self you can’t, and turn no into a resounding yes with What to Say When You Talk to Your Self! Available at Amazon.

Why We Eat Too Much


By Andrew Jenkinson

Over the last two decades leading London bariatric (weight loss) surgeon Dr. Andrew Jenkinson has interviewed thousands of ‘failed dieters’ and noticed that their experience of weight control differs from conventional medical wisdom. Why can’t dieters maintain weight loss? Why do so many think their weight problems are inherited, or that they have sluggish metabolisms compared to others?

In Why We Eat (Too Much) Dr. Jenkinson, combines case studies from his practice with the emerging new science of appetite (and metabolism) to explain why many of our preconceptions of weight control are floored and why mainstream dietary advice is failing us. Drawing on evolutionary medicine, anthropology, the development of tasty Western food and the advent of government nutritional advice to uncover the true reasons for our escalating obesity crisis.

Whether you are a failed dieter, a confused doctor or just a fascinated observer this book offers a unique, uncompromising and practical guide to understanding, and controlling, human weight regulation. Available at Amazon and Amazon UK.

Articles

1 in 10 Women Have This Condition – Two Lipedema Patients Share Their Stories – WRAL.com (2020)
‘An ongoing nightmare’: People with obesity face major obstacles when seeking medical care – NBC News
Doctor Launches First Research Center of Its Kind to Help Women With Chronic Fat Disorder – WRAL.com (2020)
Don’t Hate Me Because I’m Fat – Good Housekeeping
The Fat That’s Not Your Fault – WRAL.com (2020)
I Got Surgery for Lipedema – Here’s How It’s Different From Regular Liposuction – Real Self News
Jen’s Journey with Lipedema – Jennifer Paulson NP
One Woman’s Battle With Under-Diagnosed Autoimmune Disorder Lipedema – Spectrum News 1
Size 8 Woman Has Debilitating Condition Which Makes Her Legs Size 20 – Metro News
Victim to Victor: A Lipedema Patient Story – Lymphatic Network
A Weighty Battle in the Workplace – Chicago Tribune
What is Lipedema? All About the Fat That’s Not Your Fault – WRAL.com (2020)
What’s so Wrong With Being Overweight? ‘Fat Pig’ at Cutting Edge Theater Asks the Questions – Times Picayune
The Workplace Problem That No One Is Talking About – Refinery 29

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