Community Resources

This page features both online support groups and those few groups I’ve been able to find which meet in person.

Can’t find what you’re looking for? Have info to add to the site?
Want to add your story or write about a subject related to lipedema to educate others?
Please contact me today. Sharing our collective knowledge greatly benefits our community. There are many ways to get involved.

The site is constantly being updated. Thanks for your patience!

For Dercum’s

Adipositive! – Facebook
Dercum’s Disease – Stuff That Works
Dercum’s Disease Oregon Site – Facebook
Lipedema and Dercum’s Disease Insurance and Nutrition/Fitness – Facebook

For Lipedema

Adipositive! – Facebook
Christian Lipedema Sisters – Facebook
Compression Talk – Facebook
Cover Lipedema: Insurance Coverage for Lipedema – Facebook
Fighting Lipoedema, Lipodema, and Lymphedema – Facebook
Gemz Lipoedema Free Life! – Facebook
HAES sanity for Lipoedema and Chronic Conditions – Facebook INCLUSIVE
Hobbies & Crafts in the Lipedema Community – Facebook
Inclusive Compassion: Lipoedema 3+ – Facebook
Inclusive Lipedema Community – Facebook
International Lipedema Support Group – Facebook
Invincible Warriors with Lipedema (and Those Who Love Them) – Facebook
KETO Lifestyle for Lipedema – Facebook
Ketogenic Nutrition for Lymphedema, Lipedema, and Lipolymphedema – Facebook
Ladies with Lipoedema Who Exercise – Facebook
Limitless Lipedema Yoga – Facebook
Lipedema and Dercum’s Disease Insurance and Nutrition/Fitness – Facebook
Lipedema and Food Sensitivities: Take Control of YOUR Lipedema – Facebook
Lipedema and Lymphedema Solutions Virtual Symposiums 2021 – Facebook
Lipedema Awareness and Support (Treetrunk Legs) – Facebook
Lipedema Bodies Of Color – Facebook
Lipedema Comedy Spotlight – Facebook
Lipedema Diaries – Facebook
Lipedema Dietitian.com – Facebook
Lipedema Diva VIP Compression Buying Group – Facebook
Lipedema Eating Disorders Uncensored – Facebook
Lipedema Education – Facebook
Lipedema Fasters – Facebook
Lipedema Fitness – Facebook
Lipedema Global Social Support – Facebook
Lipedema Group – Lipedema.net (Dr. Thomas Wright) – Facebook
Lipedema in Ireland Group – Facebook
Lipedema Ladies On The Lipedema Journey – Facebook
Lipedema Legislative Action Network – USA – Facebook
Lipedema Life – Facebook
Lipedema Lifters – Facebook
Lipedema/Lipoedema Simplified Support – Facebook
Lipedema Losing with LipedemaDiva – Facebook
Lipedema – Lymphedema Used and New Compression – Facebook
Lipedema Lymphedema Water Exercise Mermaids – Facebook
Lipedema Mamas – WLS Losers Bench – Facebook
Lipedema Research, Education & Awareness USA (Dr. Michael Schwartz) – Facebook
Lipedema Research Library – Facebook
Lipedema Sisters and Liposuction Uncensored – Facebook
Lipedema Sisters Prayer Group – Facebook
Lipedema Sisters Support Group – Facebook
Lipedema Support Community – Lipedema Project
Lipedema Support Group – Facebook
Lipedema TRIBE Community – Facebook
Lipedema Writing Campaign to Doctors – Facebook
Lipoedema – Stuff That Works
Lipoedema Friends International – Facebook
Lipoedema Surgery, Support, Health & Friendship Group – Facebook
Lipoedema Warriors – Facebook
Lipoedema Warriors Luscious Ladies – Stage 3 and 4 – Facebook
Lipoedema Warriors – Stage 1 Support Group – Facebook
Lipoedema Weight Loss Surgery Support – Facebook
Lipoedemaladies – Facebook
The Lippy Clothes Shop – Facebook
Lippy Lovers – Dating for Those Over the Age of 50 – Facebook
Lippy Lovers- Lipedema Dating Group for Those With Lipedema and Their Admirers – Facebook
Lippy Sisters – Lipedema/Lipoedema Stories – Facebook
Lit Lippy Ladies – Facebook

Living Biblically with Lipedema – Facebook
Living with Lipedema: Stage 3+ – Facebook
Loving Life With Stage 1/2 Lipedema – Facebook
Lymphatic System Health Mastery – Facebook
Lymphedema and Lipedema Free Donated items – Facebook
Lymphedema and Lipodema – Facebook
Lymphoedema and Lipoedema Support – Facebook
Lymphedema/Lipedema PT/Patient Get Together – Facebook
Michelle’s Lipoedema Journey, Liposuction, Eating And Fitness – Facebook
Nutrition & Lifestyle for Lipoedema & Lymphoedema – Facebook
Nutrition for Lipoedema – A Holistic Approach – Facebook
Nutrition for Lipoedema and Lymphoedema – Facebook
Our Lipedema Life – Facebook
Overall Health 4 Fat Disorders Thru WFPB Eating – Facebook
Ozempic, Wegovy, etc., and Lipedema – Facebook
Rare Adipose Disorders (RAD) Friends of Dianne – Facebook
Shopping for Lipedema! – Facebook
Talk Lipoedema Private Chat – Facebook
The Girl With the Skinny Feet – Facebook
The Spotlight Lipedema Podcast – Facebook
They’re not cankles – Lipedema support for early stage women – Facebook
Trans & Non-Binary Folks With Lipedema – Facebook
Vegans With Lipedema – Facebook
Vibration for Fat Disorders – Facebook
Whole & Balanced Living (Lipedema & Lymphedema Support) – Facebook

Liposuction Specific

Cover Lipedema: Insurance Coverage for Lipedema – Facebook
Dr. Alejandro Galvez and Dr. Sanchez Plastic Surgery Support Group – Facebook
Dr. Marcia Byrd: Post Surgical Lipedema Patients’ Discussion Group – Facebook
Dr. Su – Artlipo, Lipedema and Liposuction – Facebook
Experience Lipemedical Dr. Burgos de la Obra – Facebook
First State Lipedema – Dr. Shapira – Facebook
Global Lipoedema Awareness – Surgeries/Doctors – Facebook
Gupta Girls – Facebook
Gutowski’s Gals for Lipedema – Facebook
House of Hagerty – Facebook
Laser Lipo and Vein Center Lipedema Group (Dr. Thomas Wright) – Facebook
LIO – Lipedema Italia Onlus – Assoc. Nazionale Pazienti affetti da Lipedema – Facebook
Lipedema Krochstars – Lipedema Surgery With Dr. Daniel Krochmal – Facebook
Lipedema Liposuction Support Group for Patients of Dr. Hagopian – Facebook
Lipedema Surgery in Georgia with Marcia Byrd, MD – Facebook
Lipedema Treatment with Dr. Alexander Nguyen – Dallas – Facebook
Lipo for Lipedema in Germany – Facebook
Lipodem derma-lymph Dr. Czarnecka – Facebook
Lipodem Dr. med. Mojtaba Ghods – Facebook
Lipoedema med-plast Dr. Labschies – Facebook
Lipoedema Patients Before and After Surgery – Facebook
Lipoedema Surgery in the UK and EU – Facebook
Lipoedema Surgery Support Group – Facebook
Lipoedema Surgery, Support, Health & Friendship Group – Facebook
Liposuction for Lipedema – Facebook
Liposuction for Lipoedema in Australia – Facebook
Liposuction Insurance Coverage (Sponsored by American Lipedema Association) – Facebook
Liposuctions Dr. Klasmeyer – Facebook
Liposuktion bei Lipödem – Dr. Jorjani – Facebook
Orlando Lipedema Surgery Support (Patients of Dr. Omar Beidas) – Facebook
Patients of Botched Lipedema Surgery Support Group – Facebook
Rosenpark Klinik Darmstadt – Erfahrungsaustausch Lipodem – Liposuction – Facebook
Salameh Lipedema – Facebook
Salameh Lipedema Patients – Facebook
Talk Lipoedema on Liposuction – Facebook
Total Lipedema Care Patients – Facebook
Tristate Lipedema – Boris Volshteyn MD – Facebook
Vaser Liposuction for Lipedema – Michael Schwartz MD – Facebook

For Lymphedema

Ladies Living with Lymphoedema UK – Facebook
Lighthouse Lymphedema Network – Facebook
Living with Lymphedema – Facebook
Living with Lymphedema Group – Facebook
LymphEd – Facebook
Lymphedema – Facebook
Lymphedema – Facebook
Lymphedema and Families – Facebook
Lymphedema – IN THE KNOW! – Facebook
Lymphedema Information – Facebook
Lymphedema Kids – Facebook
Lymphedema Lifeline Foundation – Facebook
Lymphedema Patients and Professionals – Facebook
Lymphedema – Support, Awareness and … – Facebook
Lymphedema – Support, Awareness and Help – Facebook
Lymphedema Support Group – Facebook
Lymphedema Support Group – Facebook
Lymphedema Support Group – Facebook
Lymphedema Support Group in Acadiana – Facebook
Lymphedema Warriors – Facebook
Lymphie Strong Cafe – Lymphedema Food Support Group – Facebook
Lymphie Strong Running and Fitness Club for Lymphedema – Facebook
Lymphoedema – Stuff That Works
Official Lymphie Strong Inspiration Group for Lymphedema – Facebook

For Practitioners

Lipedema and Food Sensitivities: Resource Center for Healthcare Professionals – Facebook
Lipedema Continuing Education for the CLT – Facebook
Lymphatic Professionals – Facebook
Lymphedema Therapist Group – Facebook
Lymphedema Therapists Helping Lymphedema Therapists – Facebook

Related Groups

Arm Lift Surgery Support Group (Brachioplasty) – Facebook
Talking Compression – Total Care – TC – Facebook

Australia

Aussie Lipoedema Buy Swap Sell – Facebook
Lipoedema Australia – Facebook
Lipoedema Australia Support Society – Facebook
Lipoedema Warriors Australia – Facebook
Lipoedema Western Australia – Facebook
Liposuction for Lipoedema in Australia – Facebook

Canada

Alberta Lymphedema Association – Facebook
Association québécoise du lymphœdème / Lymphedema Association of Quebec – Facebook
BC Lipedema and Lymphedema Support Group – Facebook
Lipedema Canadian Support Group/Groupe de soutien Canadien pour Lipoèdeme – Facebook FRENCH
Lymphedema Association of Manitoba – Facebook
Lymphedema Association of Newfoundland and Labrador – LANL – Facebook
Lymphedema Association of Nova Scotia – Facebook
Lymphedema Association of Saskatchewan – Facebook
Pacific Northwest Lipedema Group – Facebook
Saskatchewan Lipedema Association – Facebook

Germany

Lipo for Lipedema in Germany – Facebook

Ireland

Lipedema In Ireland – Facebook

New Zealand

New Zealand Lymphoedema/Lipoedema/Lipolymphoedema – Facebook

Scotland

Talk Lipoedema – The Gathering (Scottish Central Belt) – Facebook

Spain

Adalipe: Asociación De Afectadas de Lipedema de España – Facebook SPANISH

Taiwan

Lymphatic Education & Research Network, Taiwan Chapter – Facebook

United Kingdom

Lipedema Strength UK – Facebook
Lipoedema Surgery in the UK and EU – Facebook
Lymphatic Education & Research Network, United Kingdom Chapter – Facebook
Lymphoedema and Lipoedema Friends UK – Facebook
Talk Lipoedema Private Chat – Facebook

United States

Friends of Lipedema Sisters USA – Facebook
Lipedema Sisters USA – Facebook

Alabama

Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders – Facebook

Alaska

Arizona

Arizona Lipedema Ladies – Facebook
Phoenix Area Lipedema Ladies – Facebook
Tucson Tissue Connection – Facebook
Tucson Tissue Connection – Tucson MONTHLY MEETINGS POSTPONED

Arkansas

Lipedema Arkansas – Facebook
Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders – Facebook
Texas Lipedema Sisters – Facebook

California

Lymphatic Education & Research Network, California Chapter – Facebook
So Cal Lippy Ladies – Facebook

Colorado

Lymphatic Education & Research Network, Colorado Chapter – Facebook

Connecticut

Lipedema Strong in New England – Facebook
Lymphatic Education & Research Network, Connecticut Chapter – Facebook

Delaware

First State Lipedema – Facebook
Lipedema Mid-Atlantic Group – Facebook
Lymphatic Education & Research Network, Philly Tri-State Chapter – Facebook
Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders – Facebook

Florida

Lymphatic Education & Research Network, Florida Chapter – Facebook
SE Florida Lipedema Discussion – Facebook
Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders – Facebook
SW Florida Lipedema, Dercum’s Disease, Madelung’s Group – Facebook

Georgia

Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders – Facebook

Hawaii

Lymphatic Education & Research Network, Hawaii Chapter – Facebook

Idaho

Pacific Northwest Lipedema Group – Facebook

Illinois

Lipedema Sisters – Chicago Area – Facebook
Lipedema Sisters of Wisconsin – Facebook
Lymphatic Education & Research Network, Illinois Chapter – Downers Grove MONTHLY MEETINGS
Lymphatic Education & Research Network, Illinois Chapter – Facebook
Midwest Lipedema Support – Facebook

Indiana

Midwest Lipedema Support – Facebook

Iowa

Lipedema Sisters of Wisconsin – Facebook
Midwest Lipedema Support – Facebook

Kansas

Midwest Lipedema Support – Facebook
MO/KAN Lipedema Support – Facebook

Kentucky

Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders – Facebook

Louisiana

Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders – Facebook
Texas Lipedema Sisters – Facebook

Maine

Lipedema Strong in New England – Facebook

Maryland

Lipedema Mid-Atlantic Group – Facebook
Lymphatic Education & Research Network, Maryland Chapter – Facebook
Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders – Facebook

Massachusetts

Lipedema Strong in New England – Facebook
Lymphatic Education & Research Network, Massachusetts Chapter – Facebook

Michigan

Lipedema Michigan – Facebook
Keto and Lipedema Michigan – Facebook
Lymphatic Education & Research Network, Michigan Chapter – Facebook
Midwest Lipedema Support – Facebook

Minnesota

Lipedema Sisters Minnesota – Facebook
Lipedema Sisters of Wisconsin – Facebook
Midwest Lipedema Support – Facebook

Mississippi

Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders – Facebook

Missouri

Midwest Lipedema Support – Facebook
MO/KAN Lipedema Support – Facebook
Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders – Facebook

Montana

Nebraska

Midwest Lipedema Support – Facebook

Nevada

Lymphatic Education & Research Network, Nevada Chapter – Facebook

New Hampshire

Lipedema Strong in New England – Facebook

New Jersey

Lipedema Mid-Atlantic Group – Facebook
Lymphatic Education & Research Network, Philly Tri-State Chapter – Facebook

New Mexico

Texas Lipedema Sisters – Facebook

New York

Lipedema Mid-Atlantic Group – Facebook
Lipedema Support New York – Facebook
Lymphatic Education & Research Network, New York Chapter – Facebook

North Carolina

Lipedema Sisters North Carolina – Facebook
Lymphatic Education & Research Network, North Carolina Chapter – Facebook
Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders – Facebook

North Dakota

Midwest Lipedema Support – Facebook

Ohio

Midwest Lipedema Support – Facebook
Ohio Lipedema Sisters – Facebook

Oklahoma

Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders – Facebook
Texas Lipedema Sisters – Facebook

Oregon

Pacific Northwest Lipedema Group – Facebook
Oregon Lipedema/Dercum Disease Support Group – Beaverton MEETING VIA ZOOM AT THIS TIME

Pennsylvania

Lipedema Mid-Atlantic Group – Facebook
Lymphatic Education & Research Network, Philly Tri-State Chapter – Facebook

Rhode Island

Lipedema Strong in New England – Facebook

South Carolina

SC Lipedema Group – Facebook
Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders – Facebook
Upstate Monarchs – Greenville MONTHLY MEETINGS

South Dakota

Midwest Lipedema Support – Facebook

Tennessee

Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders – Facebook

Texas

Lipedema Treatment with Dr. Alexander Nguyen – Dallas – Facebook
Lymphatic Education & Research Network, Texas Chapter – Facebook
Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders – Facebook
Texas Lipedema Sisters – Facebook

Utah

SHALL – Lymphedema and Lipedema Support Group – Utah – Facebook

Vermont

Lipedema Strong in New England – Facebook

Virginia

Lipedema Mid-Atlantic Group – Facebook
Lymphatic Education & Research Network, DC Virginia Chapter – Facebook
Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders – Facebook

Washington

Pacific Northwest Lipedema Group – Facebook

Washington, DC

Lymphatic Education & Research Network, DC Virginia Chapter – Facebook

West Virginia

Lipedema Mid-Atlantic Group – Facebook
Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders – Facebook

Wisconsin

Lipedema Sisters of Wisconsin – Facebook
Midwest Lipedema Support – Facebook

Wyoming

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